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Neuroblastoma Resources

  • Tom's Freds team site
  • Q&A about 3F8 antibodies
    This is from MSKCC's own website. For information on HAMA, scroll down to the "What is HAMA?" question.
  • Alex's Lemonade Stands
    Alex Scott died in the summer of 2004 of neuroblastoma, which she had been fighting since she was a baby. Her motto was "When life hands you lemons, make lemonade", and in that spirit, she started running lemonade stands to raise money for pediatric cancer research. Though she is gone, the lemonade stands continue, held across the country.
  • Children's Neuroblastoma Cancer Foundation
    They sponsor the conference in Chicago. A wonderful organization
  • Lunch for Life - Saving children one lunch at a time
    This is a fundraising effort for the Children's Neuroblastoma Cancer Foundation
  • Pediatric Cancer Foundation
    I rode in a Bikeathon to raise money for these guys. Among many worthy projects, they have given money for Dr. Cheung's antibody research at Sloan-Kettering. Elias is directly benefiting from this research now.

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May 21, 2006

Pediatric Cancer Foundation Bikeathon

I rode in the bikeathon today. The weather was perfect for bicycling. There were lots of people riding in it this year. They had face painting and tatoos for kids. I talked to a woman whose daughter is being treated for Hodgkins at MSKCC. She knew a lot about the neuroblastoma kids and the antibodies since there are so many of those kids at the clinic.

Many thanks to everyone who contributed to my ride.

Unfortunately, we forgot to bring a camera. But I did take some photos of the kids when we got back home so everyone could see their face painting. Malachi asked to be a tiger, and Elias chose his usual dinosaur.

May 21, 2006 | | Comments (1)

May 08, 2006

Elias has clean scans again

Elias had his quarterly scans last week at MSKCC. I am happy to report that the test results are all good. Elias has now been in remission for 2 years. In the neuroblastoma world, this is considered to be a very good milestone.

Elias will be doing his very last round of 3F8 antibodies starting the week after Memorial Day. After that, he will officially be off treatment at last.

May 08, 2006 | | Comments (3)