Malachi & Elias

The big cube in Astor Place

We were in Manhattan on Saturday to meet friends. To get back to Grand Central, we took the subway from Astor Place, where there is this large black cube balanced on one end. The cube has been there as long as I can remember, and has always been a prop for trendy teens to pose in front of when they are snapping photos. I promised Malachi that we would take a look at it before getting on the subway. I told him that you can spin it.

When we got there, the usual clump of trendies were taking photos, of a small robot toy that they were posing under the cube. I shot a photo of Malachi posing. Then he want to spin the cube. The teens thought that was a good idea, so Malachi and trendy teen spun the cube round and round while we all snapped photos.

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Scan results are all good

We now have the CT scan, the MIBG scan, and the bone marrow results, and they are all clear.

We're going to the "dinosaur bone" museum tomorrow in NYC to meet some friends who are here from California. They have a little girl who was born one day before Elias.

Elias has scans Aug 8 and 9

Elias is scheduled for his quarterly scans tomorrow and Wednesday. Today he had to go into clinic to be cleared for all the procedures. We took a train in, and a cab up to  MSKCC. Elias saw all the usual people and got weighed and measured.  There was also a visiting doctor from a hospital in Rome who was  observing, and he asked lots of questions about Elias and blew bubbles  with him. Elias had to have blood drawn, which he was not happy about,  and it took two tries to get it going.

Aftrwards, we went to the  playroom so he could do "CT scan play" with one of the Child Life  specialists. Elias is going to attempt the CT scan without anesthesia. We have to make sure he can stay still for 10 minutes or so.

They were setting up the playroom for the Talent Show  tomorrow. I got to see Dr Cheung practicing his number! Keep in mind  that he is a older distinguished doctor who manages enormous grants from  the NIH and who publishes everywhere. But there he was, belting out a  tune. I also heard that the entire NB team, including Dr Modak and Dr  Kushner and Ursula and everyone, will be singing a song from The Lion  King together. This should be a hoot.

Elias loves school

They made these Tshirts in preschool. Elias loves wearing it.